Share your story

Every family's journey to a diagnosis of KCNT1 is different. Every family situation is different, and how each family adjusts is different. Please share your story and help us spread awareness for KCNT1 related disorders.

RECORD a VIDEO HERE.

(This will take you to an external link to MemoryFox.)

You may also fill out the form below and email photos to support@kcnt1epilepsy.org.

Your KCNT1 Warrior

First Name

Last Name

Tell us about your story

Fill out the permission form below:

Your Name

First Name

Last Name

Do you give us permission to share your story and images on our website, social media and awareness and promotional materials?

Website and Social Media

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Social Media Only

None of the Above