Share your story

Every family's journey to a diagnosis of KCNT1 is different. Every family situation is different, and how each family adjusts is different. Please share your story and help us spread awareness for KCNT1 related disorders.

RECORD a VIDEO HERE.

You may also fill out the form below and attach photos.

Your KCNT1 Warrior

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Tell us about your story

Fill out the permission form below:

Your Name

First Name

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Do you give us permission to share your story and images on our website, social media and awareness and promotional materials?

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Google Drive to Add Photos