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The KCNT1 Epilepsy Foundation is proud to have the support of a diverse group of experienced academic and industry scientists and pediatric epilepsy neurologists on our Scientific Advisory Board. Bringing these great minds together we are sure to gain insights needed to find disease-modifying methods to cure or halt the progression of this disease.

If you are interested in joining our advisory board, joining our reference list of experts, or would like to participate in research or submit an LOI* to help find treatments and a cure for KCNT1 please contact Justin@kcnt1epilepsy.org 

*Please note that funds are not to be used to purchase equipment. Please note that indirect costs and institutional overhead are not provided.

KCNT1
Scientific Advisors 

David R. Bearden, MD

  • Pediatric Neurology

  • Assistant Professor Department of Neurology and Department of Pediatrics

  • University of Rochester Medical Center

  • Professor at University of Zambia and University of Botswana

Felippe Borlot, MD

  • Alberta Children’s Hospital Research Institute; Cumming School of Medicine, University of Calgary, Alberta, Canada

Robertino Dilena, MD

  • Unit of Clinical Neurophysiology, Department of Neuroscience and Mental Health, Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico, Milan, Italy 

  • UOC Neurofisiopatologia - Clinica Mangiagalli -

  • Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico

Kyle Emmitte, PhD

  • University of North Texas System College of Pharmacy Chair and Professor, Pharmaceutical Sciences

David Fischer, PhD

  • Executive Director, Discovery Sciences Charles River Laboratories

Alfred L. George, Jr., MD 

  • Chair, Department of Pharmacology Director, Center for Pharmacogenomics 

  • Magerstadt Professor of Pharmacology 

  • Northwestern Medicine, Northwestern University

Tracy S. Gertler, MD, PhD 

  • Attending Physician, Neurology Assistant Professor of Pediatrics (Neurology) 

  • Northwestern University Feinberg School of Medicine 

  • Lurie Children’s Hospital of Chicago 

Gregory Kaczorowski, PhD

  • President and CEO of Kanalis Consulting, L.L.C.

  • Former Senior Director, Department of Ion Channels, Merck Research Laboratories, Rahway, NJ

Jonathon ‘J.D.’ Lippiat, PhD

  • School of Biomedical Sciences

  • University of Leeds

Anna McGregor 

  • Medical Student, Boston University School of Medicine 

Amy McTague, PhD 

  • BRC Catalyst Fellow 

  • Developmental Neurosciences Dept 

  • Faculty of Pop Health Sciences 

  • UCL Great Ormond Street Institute of Child Health 

Danielle Molinari Andrade, MD, MSc, FRCPC

  • Krembil Clinician Investigator, Krembil Research Institute (Krembil)

  • Medical Director of the Epilepsy Program 

  • Director of Krembil Neuroscience Epilepsy Genetics Program

  • University Health Network, University of Toronto

Rikke Steensbjerre Møller, PhD 

  • Head of Department of Epilepsy Genetics and Personalized Medicine 

  • Danish Epilepsy Centre/University of Southern Denmark 

Rima Nabbout, MD, PhD

  • Professor, Pediatric Neurology

  • Director of the reference centre for rare epilepsies, CReER, EPICARE

  • Hôpital Necker Enfants malades

Douglas R. Nordli, Jr., MD 

  • Professor of Pediatrics Chief, Pediatric Neurology Co-Director, Comprehensive Epilepsy Center 

  • Department of Pediatrics, University of Chicago   

Scott Perry, MD

  • Medical Director, Neurology; Co-Director, Jane and John Justin Neurosciences Center; 

  • Medical Director, Genetic Epilepsy Clinic, Neurology

  • Cook Children’s Hospital, Fort Worth, TX

Guido Rubboli 

  • Professor of Clinical Epileptology  

  • University of Copenhagen, Danish Epilepsy Center Filadelfia

Brittany Spitznagel 

  • Pharmacist and PhD Candidate in Pharmacology 

  • Vanderbilt University  

Maurizio Taglialatela, MD PhD

  • Professor of Pharmacology, Section of Pharmacology, Dept. of Neuroscience

  • University of Naples Frederico II, Naples, Italy

C. David Weaver  

  • Principal Investigator, Associate Professor, Pharmacology   

  • Vanderbilt Institute of Chemical Biology 

  • Vanderbilt University 

Matthew C. Weston, PhD

  • Assistant Professor, Tenure Pathway, Department of Neurological Sciences

  • University of Vermont College of Medicine

Christopher Whelan

  • Senior Scientist 

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Robyn Whitney, MD

  • Pediatric Epileptologist and Assistant Professor, Pediatrics; McMaster Children’s Hospital

  • The Hospital for Sick Children