Together we can solve the extreme problem of pediatric epilepsy!
Mutations in the KCNT1 gene can cause severe epilepsy in children. Help us empower families to tackle this challenge with education, support and new treatments!
Questions? Email us!
The donation form allows many types of payment methods including PayPal, Venmo and the ability to give through your Donor Advised Fund (DAF). You can pay by check as well.
Your gift will enable us to move the mission forward. We are the only organization focused on finding treatments for the hundreds of families faced with this catastrophic diagnosis. Your gift will be used to fund critical research and support our families so they are not alone in this journey.
Seizures can strike within hours of days of a baby’s birth… and they can lead to permanent brain damage or even death.
“The Foundation has catalyzed dialogue and collaboration between researchers that has generated new ideas and implementation of studies to develop and test new drugs to treat KCNT1-related epilepsy.”
Matt Weston, PhD, Virginia Tech
You can fund important research, family support programs and education materials
Making A Difference
“Since our son's diagnosis in 2021, this Foundation has been a beacon of hope and a source of invaluable information.
The information, guidance, and resources offered have been a tremendous help in navigating the challenges that come with our son's diagnosis of KCNT1 related epilepsy. Their resources have not only educated us but also empowered us to make informed decisions about his care and wellbeing.
In addition to the practical information, this Foundation has also created a sense of community and connection with other families. Knowing that we are not alone in this journey is comforting, and this Foundation has played a significant role in fostering a supportive network for families like ours.
I am deeply grateful for their dedication to making our journey more manageable, more informed, and filled with hope.”
Lorena, KCNT1 Warrior Mom
“I wanted to tell you how much I appreciate the KCNT1 Foundation and the work that you do. Being able to provide families who have a new diagnosis such an incredible wealth of resources and community is invaluable, and I admire the tireless advocacy work that goes into pushing research on treatments forward.”
Laura, MMSc, CGC
Licensed, Certified Genetic Counselor
Children’s Healthcare of Atlanta Neurosciences
