KCNT1 Epilepsy Foundation Chosen as a CURE Epilepsy Grant Partner to Support a KCNT1 Research Grant 

May 20, 2024

The KCNT1 Epilepsy Foundation was selected for an opportunity to potentially fund a $100,000 Rare Epilepsy Partnership Award in partnership with CURE Epilepsy, the leading nongovernmental agency fully committed to funding research to find the cure for all epilepsies. CURE Epilepsy and the KCNT1 Epilepsy Foundation will be joint partners, co-funding this research grant to accelerate progress on our research priorities, doubling the dollars and reach of our Foundation. This request for proposals will include 3 potential research directions: two intended to follow on the heels of new reports linking KCNT1 to traumatic brain injury-induced epilepsy, and linking KCNT1 to the other rare channelopathies SCN1A and SCN8A; and one to follow on the KCNT1 caregiver-reported phenomenon linking a reduction in seizures to episodes of fever. We thank our generous donors, as their contributions allow us to pursue greater co-funding opportunities which can lead to foundational research that helps us understand this devastating form of epilepsy. 

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Bringing Together the International KCNT1 Research Community 

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KCNT1 Families meet with the FDA in a Patient Listing Session