KCNT1 Epilepsy Foundation News & Updates
Stay updated with the latest news on KCNT1 epilepsy, including genetic research, drug advancements, patient stories, advocacy efforts, and support for parents.
Orange County Doctor Helps Lead the fight against hi sons Rare disorder
Co-founder Justin West was interviewed for Rare disease week, where he shares his story and determination to find treatments for all the children with KCNT1 related illnesses.
KCNT1 & Good Day Chicago Fox32
Co-founder Samantha MacMechan interviewed on Good Day Chicago Fox 32 about KCNT1 diagnosis and fighting for a cure .
Raising Awareness of Rare Diseases with the West Family
Co-Founder, Justin West and his family are featured in a local magazine for Rare Disease Week.
What It's Like To: Seek a Cure for a Rare Disease
Dr. Justin West, an Orange County plastic surgeon, describes his 3-year-old son’s genetic seizure disorder and the search for treatment.
Open Book with the KCNT1 Epilepsy Foundation
In this episode we hear from Samantha MacMechan, Co-Founder of the KCNT1 Epilepsy Foundation, sharing on their nonprofit’s awesome mission to find a disease-modifying treatment for their incredible kiddo warriors.
KCNT1 Epilepsy Foundation, LunaPBC, and Genetic Alliance to Launch Patient-Led Discovery Program
Program incorporates patient-driven study to inform research and drug development for KCNT1-related epilepsy