sibling resources
We know it is a different experience to be the sibling of a KCNT1 warrior. Here you will find a comprehensive list of resources, an invitation for siblings 5 and up to join a virtual sibling support group, participate in important surveys and order or download resource kits for both caregivers and siblings.
survey for parent and child
Genetic counselor Abby Turnwald and colleagues created a research study to learn how parents communicate neurogenetic diagnosis to their unaffected children (siblings). They are looking for parents with a child with a neurogenetic condition and at least one child without the condition age 7-17 years to participate. The parent will take a short survey followed by a survey for the sibling. They hope to use this data to create more resources for siblings!
Access Resources
Access this collection of resources related to siblings and sibling relationships.
Order or Download VIP Sibling Kits
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