Remember Elijah

Elijah was a funny little boy; you would always know when he was grumpy at you with his facial expressions. He spoke so much with his face. You could always tell when he was happy or grumpy or when he wanted to be picked up for cuddles.

Our family was so supportive with Elijah, with a few family members learning his every single need, so they were able to care for him to give us a break at times. I found it hard to venture out into the community at first when he was little, fearing how people may look at me. As Elijah was on oxygen for the first year of his diagnosis before we were able to slowly wean, carrying multiple medical equipment in the pram, there were always some odd looks from onlookers. But I eventually got past this, and we enjoyed going out when we could.

I was a nurse prior to having Elijah, but when he was diagnosed, I knew I couldn't go back to work and devoted my time to caring for him and our other children.

Although Elijah has passed now, he was 4 when he passed. He was always my strength; he pulled me through some bad days and weeks, but so did my other children. They always just seen as their sibling, especially our oldest, Jayger. These two were thick as thieves and had a love for each other like no other.

Silver linings, Elijah taught us so much. How to love even deeper, that there's more to life. You learn to love the little moments, the little wins you get during the day, slowing down and just enjoying each other's company and being thankful that we made it through another day.

He was/is the light of our life and will continue to be so. I will always share his story with such pride and love.