Meet Levi

Raising awareness for KCNT1 is so important to me as I have a little warrior named Levi who is 2.5 years old. His seizures started at 4months of age and for the first 1.5years of his life we spent half our time in the hospital. We are one of the lucky ones where we have managed some level of control for his seizures which has meant Levi has learnt to sit up and hold a bottle to drink. Levi is still working on crawling, standing, walking and eating foods. He has a big sister who adores him and we are so hopeful that through the efforts of the Foundation, treatment for Levi and kids who suffer from this devastating diagnosis that could provide more quality of life and even extend his life expectancy is just around the corner. Levi is on instagram at @lifeoflevi_kcnt1 if anyone wants to learn a little more about what living with this condition is like. Thank you again for helping raise awareness and donating!