“I believe this foundation is vital for new families as they navigate a whole new world.” ~ Angela, mother of a child with KCNT1-epilepsy
Help Fund Critical Research for KCNT1 Epilepsy that Will Save Children’s Lives!
Right now, there are children suffering from this rare and life-shattering disorder that wreaks havoc on them. For their moms and dads, it’s devastating watching their children disappear into bodies and brains that no longer work properly.
We need research! Your donation right now will be another step on our relentless journey to treatment and a cure.
Every dollar you give fuels innovative and critical research, providing hope to families affected by this rare disorder. Together, we can make a difference in the lives of Anna and Evangeline, and those battling KCNT1 and move closer to a cure.
Will you be RELENTLESS with us in our fight for a cure? Please don’t wait! Children are suffering now. Donate here
Be relentless with us and fight for Anna and Evangeline!
If you’d like to mail a check, please note our new mailing address:
32531 N Scottsdale Rd; Ste 105-530
Scottsdale, AZ 85266
Seizures can strike within hours of days of a baby’s birth… and they can lead to permanent brain damage or even death.
“The Foundation has catalyzed dialogue and collaboration between researchers that has generated new ideas and implementation of studies to develop and test new drugs to treat KCNT1-related epilepsy.”
Matt Weston, PhD, Virginia Tech
You can fund important research, family support programs and education materials
From a Grandfather of a child with KCNT1-epilepsy:
“This non profit is well run and completely dedicated to helping these children with KCNT1 Epilepsy. I have been involved with this foundation for over a year, and have only good this to say about the staff, leadership and their vision.”
Making A Difference
“Since our son's diagnosis in 2021, this Foundation has been a beacon of hope and a source of invaluable information.
The information, guidance, and resources offered have been a tremendous help in navigating the challenges that come with our son's diagnosis of KCNT1 related epilepsy. Their resources have not only educated us but also empowered us to make informed decisions about his care and wellbeing.
In addition to the practical information, this Foundation has also created a sense of community and connection with other families. Knowing that we are not alone in this journey is comforting, and this Foundation has played a significant role in fostering a supportive network for families like ours.
I am deeply grateful for their dedication to making our journey more manageable, more informed, and filled with hope.”
Lorena, KCNT1 Warrior Mom
“I wanted to tell you how much I appreciate the KCNT1 Foundation and the work that you do. Being able to provide families who have a new diagnosis such an incredible wealth of resources and community is invaluable, and I admire the tireless advocacy work that goes into pushing research on treatments forward.”
Laura, MMSc, CGC
Licensed, Certified Genetic Counselor
Children’s Healthcare of Atlanta Neurosciences
