2025 KCNT1 Family Conference & EADDL Epilepsy Expo
2025 KCNT1 Family Conference & Epilepsy Expo
Tuesday, Nov 11 - conference, Expo and Dinner
Wednesday, Nov 12 - Park day
Join us in Anaheim, Califorina for two days of fun! Tuesday we will meet in the morning for our own private family conference, then go to the EADDL conference where you can check in to the expo hall and you will hear from additional speakers. Tuesday evening we have a family dinner at our hotel, then Wednesday it’s off to Disneyland.
Register for conference below. Travel assistance up to $500 may be available.
EADDL requires a separate free registration.
Conference Agenda
Location: Hyatt House, Anaheim, California
Breakfast on your own
9am - 11:30am Research Updates and Clinical Trial Updates
11:45-12:30 On Your Own
1:00-4:00 Speakers & Optional Expo Attendance
5:30 Families Meet for Dinner
Hotel and Conference Center
We have reserved a small block of rooms at the Hyatt House ($309 plus tax). We will be providing a booking link after you register. You may apply for a travel scholarships for up to $500 to offset your hotel costs.
Transportation and Parking
Anaheim is close to the Santa Ana/Orange County (SNA) airport, and not far from the Long Beach airport. Uber offers UberFamily, featuring vehicles with car seats and booster seats for families, as well as wheelchair accessible vehicles (WAV). Visit www.uber.com for more information.
Family Scholarship Application - Due October 1
Thanks to our generous Event Sponsors, we will are offering scholarships to those who require it. Scholarships are for families with a child diagnosed on a genetic report with KCNT1 disorders and have a financial need. Complete our application here.
Please Read our Refund and Conference Policies here.
Agenda & Details
Tue Morning 9-11:30 : KCNT1 Family Conference at Hyatt Hotel
Tuedsay Afternoon: EADDL Expo (100+ exhibitors, 80+ talks) at Disneyland Hotel (walk or take trolley)
Tuesday Evening 5:00: Family Dinner at Hyatt Hotel
Hotel information:
The Hyatt House rooms are all suites with kitchenettes and are within walking distance to the EADDL Expo, as well as drug stores, coffee, restaurants. Uber and taxi are available from the Orange County/Santa Ana (SNA) airport.
https://www.hyatt.com/hyatt-house/en-US/anaxa-hyatt-house-at-anaheim-resort-convention-center
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Wed : Disneyland® Park Day—join KCNT1 families and hundreds of others in a sea of purple shirts.
Two registrations required (EADDL/Expo and KCNT1 conference).
EADDL registrants receive a Disneyland® ticket discount code. Park admission not included. Copy and paste this into a browser to register for free at EADDL: https://epilepsyawarenessday.org/
EADDl also offers hotel blocks & discounted tickets info emailed. Travel aid up to $500—separate application. Optional early arrival Mon (Nov 10).